Do you ever wake up suddenly by a noise and try to spring into action? It's dark, everything is a little blurring, and your body just works on auto-pilot. Sitting in the MRI room watching Elsa was a blurry dark mess of emotions. Yet in the mess there were sparks of light, sparks of hope.… Continue reading Dark Rooms Part 2
Tag: PWS
Dark Rooms, Part 1
This post contains affiliated links. Memories exude a color in my mind. Darkness is the only way to describe a week I did not expect in our journey to a diagnosis with Elsa. I frequented our pediatrician weekly for weight checks. I pulled myself together for each visit and thoughtfully placed Elsa in her car… Continue reading Dark Rooms, Part 1
Survive or Thrive
The first time you meet your child is one of the best moments in life. So new, so naive, vulnerable, and reliant on innate instincts of the human condition. You would think motherhood would come naturally. You would think breastfeeding and understanding your babies every little noise would be instinct. If you're a mother, you know… Continue reading Survive or Thrive
Sixth Sense
All humans have five major senses to engage with the world. These senses let us explore and interact with our surroundings, the physical world that we can enhance with our smell, taste, touch, sound, and sight. What about that gut feeling, the intuition or discernment of a situation? Is that our sixth sense? Day two… Continue reading Sixth Sense
Rose Colored Glasses
Have you ever worn a great pair of sunglasses in the summer? The lake isn't as blinding when the sun hits the waves, the trees are a little greener, and the world is a little more crisp. Take them off and the sun burns your eyes making you squint with pain. Elsa continued to take… Continue reading Rose Colored Glasses